Movement Disorder
Description of Support
LINKS
Parkinson's Disease
Parkinson Society Canada
This is our National Parkinson's organization. The site includes links to supports to each province
www.parkinson.ca
Parkinson Foundation
www.parkinson.org
American Parkinson Disease Association
www.apdaparkinson.org
The Parkinson's Alliance
www.parkinsonalliance.net
Davis Phinney Foundation
www.davisphinneyfoundation.org
Genetic information about Parkinson's - genetest.org
www.ncbi.nlm.nih.gov/sites/GeneTests
Atypical Parkinsons
or
Parkinson's "Plus"
PSP NIH information page and resource links
www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Progressive-Supranuclear-Palsy-Fact-Sheet
PSP - Progressive Supranuclear Palsy
www.psp.org
MSA - Multiple System Atrophy NIH information page
www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Multiple-System-Atrophy
MSA - Multiple System Atrophy
www.shy-drager.org
Corticobasal Degeneration - NIH information page
https://www.ninds.nih.gov/Disorders/All-Disorders/Corticobasal-Degeneration-Information-Page
Dementia with Lewy bodies - NIH information page
www.ninds.nih.gov/Disorders/All-Disorders/Dementia-Lewy-Bodies-Information-Page
Tremor
International Essential Tremor Foundation
www.essentialtremor.org
Essential Tremor - NIH information page
www.ninds.nih.gov/Disorders/All-Disorders/Essential-Tremor-Information-Page
Dystonia
Canadian Dystonia Organization
www.dystoniacanada.org
Dystonia - NIH information page
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Dystonias-Fact-Sheet
USA - Dystonia Foundation
www.dystonia-foundation.org
Blepharospasm - Canadian Research Foundation Inc.
www.blepharospasm.ca
Blepharospasm Research Foundation, Inc.
www.blepharospasm.org
National Spasmodic Dysphonia Association
www.dysphonia.org
A review of inherited dystonias - go to genetest.org and type dystonia in Disease name search field and hit go
Tics / Tourette's
Tourette Syndrome Foundation of Canada
The site includes links to supports to each province
www.tourette.ca
Tourette Syndrome Association
www.tsa-usa.org
Tourette Syndrome "Plus"
www.tourettesyndrome.net
Tourette's Syndrome Fact Sheet from NIH
www.ninds.nih.gov/disorders/tourette/detai l_tourette.htm
Huntington's Disease
Huntington Society of Canada
www.hsc-ca.org
Huntington's Study Group - - Current research efforts
www.huntington-study-group.org
Huntington's Disease Society of America
www.hdsa.org
Huntington's Disease - NIH information page
www.ninds.nih.gov/disorders/huntington/h untington.htm
Huntington's at genetest.org
https://www.ncbi.nlm.nih.gov/books/NBK1305/
HD Drug Works
http://hddrugworks.org/
Neuroacanthocytosis
Neuroacanthocytosis - NIH information page
www.ninds.nih.gov/Disorders/All-Disorders/Neuroacanthocyto sis-Information-Page
Chorea acanthocytosis - genetest.org = go to genetest.org and type Neuroacanthocytosis in Disease name search field and hit go
Other Choreas
Chorea - NIH information page
https://www.ninds.nih.gov/Disorders/All-Disorders/Chorea-Information-Page
Restless Leg Syndrome
US RLS site
www.rls.org
RLS - NIH information page
www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Restless-Legs-Syndrome-Fact-Sheet
Myoclonus
Myoclonus - NIH information page
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Myoclonus-Fact-Sheet
Myoclonus dystonia info at genetest.org - go to genetest.org and type Myoclonus in Disease name search field and hit go
Ataxias
USA National Ataxia Foundation
www.ataxia.org
Ataxia -- NIH information page
https://www.ninds.nih.gov/Disorders/All-Disorders/Ataxias-and-Cerebellar-or-Spinocerebellar-Degeneration-Information-Page
Hereditary ataxias at genetests.org -go to genetest.org and type Ataxia in Disease name search field and hit go
Wilson's Disease
USA - The Wilson's Disease Association
www.wilsonsdisease.org
Wilson's disease at genetests.org - go to genetest.org and type Wilson in Disease name search field and hit go
Other Movement Disorders
You can look under specific disorders at the NIH site
www.ninds.nih.gov/index.htm
