The Canadian Movement Disorder Group
Support Organizations / Informative Sites

Movement Disorder

Description of Support

LINKS

Parkinson's Disease

    Parkinson Society Canada

    This is our National Parkinson's organization. The site includes links to supports to each province

www.parkinson.ca

    Parkinson Foundation

www.parkinson.org

    American Parkinson Disease Association

www.apdaparkinson.org

    The Parkinson's Alliance

www.parkinsonalliance.net

    Davis Phinney Foundation

www.davisphinneyfoundation.org

    Genetic information about Parkinson's - genetest.org

  • go to genetest.org and type Parkinson in Disease name search field and hit go

www.ncbi.nlm.nih.gov/sites/GeneTests

Atypical Parkinsons

or

Parkinson's "Plus"

    PSP NIH information page and resource links

www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Progressive-Supranuclear-Palsy-Fact-Sheet

    PSP - Progressive Supranuclear Palsy

www.psp.org

    MSA - Multiple System Atrophy NIH information page

www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Multiple-System-Atrophy

    MSA - Multiple System Atrophy

www.shy-drager.org

    Corticobasal Degeneration - NIH information page

https://www.ninds.nih.gov/Disorders/All-Disorders/Corticobasal-Degeneration-Information-Page

    Dementia with Lewy bodies - NIH information page

www.ninds.nih.gov/Disorders/All-Disorders/Dementia-Lewy-Bodies-Information-Page

Tremor

    International Essential Tremor Foundation

www.essentialtremor.org  

    Essential Tremor - NIH information page

www.ninds.nih.gov/Disorders/All-Disorders/Essential-Tremor-Information-Page

Dystonia

    Canadian Dystonia Organization

www.dystoniacanada.org

    Dystonia - NIH information page

https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Dystonias-Fact-Sheet

    USA - Dystonia Foundation

www.dystonia-foundation.org

    Blepharospasm - Canadian Research Foundation Inc.

www.blepharospasm.ca

    Blepharospasm  Research Foundation, Inc.

www.blepharospasm.org

    National Spasmodic Dysphonia Association

www.dysphonia.org

    A  review of inherited dystonias - go to genetest.org and type dystonia in Disease name search field and hit go

www.ncbi.nlm.nih.gov/sites/GeneTests

Tics / Tourette's

    Tourette Syndrome Foundation of Canada

    The site includes links to supports to each province

www.tourette.ca

    Tourette Syndrome Association

www.tsa-usa.org

    Tourette Syndrome "Plus"

www.tourettesyndrome.net

    Tourette's Syndrome Fact Sheet from NIH

www.ninds.nih.gov/disorders/tourette/detai l_tourette.htm

Huntington's Disease

    Huntington Society of Canada

www.hsc-ca.org

    Huntington's Study Group - - Current research efforts

www.huntington-study-group.org

    Huntington's Disease Society of America

www.hdsa.org

    Huntington's Disease - NIH information page

www.ninds.nih.gov/disorders/huntington/h untington.htm

    Huntington's at genetest.org

https://www.ncbi.nlm.nih.gov/books/NBK1305/

         HD Drug Works

http://hddrugworks.org/

Neuroacanthocytosis

    Neuroacanthocytosis - NIH information page

www.ninds.nih.gov/Disorders/All-Disorders/Neuroacanthocyto sis-Information-Page

    Chorea acanthocytosis - genetest.org = go to genetest.org and type Neuroacanthocytosis in Disease name search field and hit go

www.ncbi.nlm.nih.gov/sites/GeneTests

Other Choreas

    Chorea - NIH information page

https://www.ninds.nih.gov/Disorders/All-Disorders/Chorea-Information-Page

Restless Leg Syndrome

    US RLS site

www.rls.org

    RLS -  NIH information page

www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Restless-Legs-Syndrome-Fact-Sheet

Myoclonus

    Myoclonus - NIH information page

https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Myoclonus-Fact-Sheet

    Myoclonus dystonia info at genetest.org - go to genetest.org and type Myoclonus in Disease name search field and hit go

www.ncbi.nlm.nih.gov/sites/GeneTests

Ataxias

    USA National Ataxia Foundation

www.ataxia.org

    Ataxia -- NIH information page

https://www.ninds.nih.gov/Disorders/All-Disorders/Ataxias-and-Cerebellar-or-Spinocerebellar-Degeneration-Information-Page

    Hereditary ataxias at genetests.org -go to genetest.org and type Ataxia in Disease name search field and hit go

www.ncbi.nlm.nih.gov/sites/GeneTests

Wilson's Disease

    USA - The Wilson's Disease Association

www.wilsonsdisease.org

    Wilson's disease at genetests.org - go to genetest.org and type Wilson in Disease name search field and hit go

www.ncbi.nlm.nih.gov/sites/GeneTests

Other Movement Disorders

    You can look under specific disorders at the NIH site

www.ninds.nih.gov/index.htm

 

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