The Canadian Movement Disorder Group
Support Organizations / Informative Sites

Movement Disorder

Description of Support

LINKS

General Movement Disorders

    We Move - A site dedicated to worldwide education and awareness of movement disorders

www.wemove.org

Parkinson's Disease

    Parkinson Society Canada

    This is our National Parkinson's organization. The site includes links to supports to each province

www.parkinson.ca

    National Parkinson Foundation This highly recommended site contains many patient directed publications that can be ordered free and a ask the Doctor line, ask the dietician line as well as a maintained "What's Hot" in PD site

www.parkinson.org

    Parkinson's Disease Foundation

www.pdf.org

    American Parkinson Disease Association

www.apdaparkinson.org

    The Parkinson's Alliance

www.parkinsonalliance.net

     

 

    Genetic information about Parkinson's - gene reviews.org

  • go to gene reviews.org and type Parkinson in the search field

www.ncbi.nlm.nih.gov/books/nbk1116/toc/?report=reader

Atypical Parkinsons

or

Parkinson's "Plus"

    PSP NIH information page and resource links

www.ninds.nih.gov/disorders/psp/psp.htm

    PSP - Progressive Supranuclear Palsy

www.psp.org

    MSA - Multiple System Atrophy NIH information page

www.ninds.nih.gov/disorders/msa/msa.htm

    MSA - Multiple System Atrophy

www.shy-drager.org

    Corticobasal Degeneration - NIH information page

www.ninds.nih.gov/disorders/corticobas al_degeneration/corticoba sal_degeneration.htm

    Dementia with Lewy bodies - NIH information page

www.ninds.nih.gov/disorders/dementia withlewybodies/dementia withlewybodies.htm

Tremor

    International Essential Tremor Foundation

www.essentialtremor.org  

    Essential Tremor - NIH information page

www.ninds.nih.gov/disorders/essential_t remor/essential_tremor.htm

Dystonia

    Canadian Dystonia Organization

www.dystoniacanada.org

    Dystonia - NIH information page

www.ninds.nih.gov/disorders/dystonias/ dystonias.htm

    USA - Dystonia Foundation

www.dystonia-foundation.org

    Blepharospasm - Canadian Research Foundation Inc.

www.blepharospasm.ca

    Blepharospasm  Research Foundation, Inc.

www.blepharospasm.org

    National Spasmodic Dysphonia Association

www.dysphonia.org

    A discussion of the different forms of dystonia

www.dystonia-foundation.org /what-is-dystonia

    A  review of inherited dystonias - go to genetest.org and type dystonia in Disease name search field and hit go

www.ncbi.nlm.nih.gov/sites/GeneTests

Tics / Tourette's

    Tourette Syndrome Foundation of Canada

    The site includes links to supports to each province

www.tourette.ca

    Tourette Syndrome Association

www.tsa-usa.org

    Tourette Syndrome "Plus"

www.tourettesyndrome.net

    Tourette's Syndrome Fact Sheet from NIH

www.ninds.nih.gov/disorders/tourette/d etail_tourette.htm

Huntington's Disease

    Huntington Society of Canada

www.hsc-ca.org

    Huntington's Study Group - - Current research efforts

www.huntington-study-group.org

    Huntington's Disease Society of America

www.hdsa.org

    Huntington's Disease - NIH information page

www.ninds.nih.gov/disorders/huntington /huntington.htm

    Huntington's at genetest.org

www.ncbi.nlm.nih.gov/books/nbk1305/?report=reader

         HD Drug Works

http://hddrugworks.org/

Neuroacanthocytosis

    Neuroacanthocytosis - NIH information page

www.ninds.nih.gov/disorders/neuroacan thocytosis/neuroacanthoc ytosis.htm

    Chorea acanthocytosis - go to genereviews and type Neuroacanthocytosis in search field

www.ncbi.nlm.nih.gov/books/nbk1116/toc/?report=reader

Other Choreas

    Chorea - NIH information page

www.ninds.nih.gov/disorders/chorea/ch orea.htm

Restless Leg Syndrome

    US RLS site

www.rls.org

    RLS -  NIH information page

www.ninds.nih.gov/disorders/restless_le gs/restless_legs.htm

Myoclonus

    Myoclonus - NIH information page

www.ninds.nih.gov/disorders/myoclonus /myoclonus.htm

    Myoclonus dystonia - go to genereviews and type "Myoclonus-dystonia" in search field

www.ncbi.nlm.nih.gov/books/nbk1116/toc/?report=reader

Ataxias

    USA National Ataxia Foundation

www.ataxia.org

    Classifications of Ataxias

www.neuro.wustl.edu/neuromuscular/ataxi a/aindex.html

    Ataxia -- NIH information page

www.ninds.nih.gov/disorders/ataxia/ata xia.htm

    Hereditary ataxias - go to gene reviews and type "Ataxia" in the search field

www.ncbi.nlm.nih.gov/books/nbk1116/toc/?report=reader

Wilson's Disease

    USA - The Wilson's Disease Association

www.wilsonsdisease.org

    Wilson's disease - go to gene reviews and type "Wilson" in search field

www.ncbi.nlm.nih.gov/books/nbk1116/toc/?report=reader

Other Movement Disorders

    You can look under specific disorders at the NIH site

www.ninds.nih.gov/index.htm

 

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